Asbestos Support Groups

Asbestos Victims’ Organizations Facebook Pages

Thanks To
Asbestos Disease Awareness Organization

Asbestos Disease Awareness Organization (ADAO) Note- we are inviting our 1500 supporters on our “Cause” page to join our new page.
2008 ADAO Causes
2010 Global Ban Asbestos Network (GBAN)
ADSVIC (Asbestos Diseases Society of Victoria Inc) – Australia
Asbestos Victims Association (SA) Inc.
Ban Asbestos Philippines
Barrow Asbestos-Related Disease Support (BARDS) – UK
Bernie Banton Foundation (BBF) – Australia
Cure Meso (MARF)

Community Facebook Pages

ADAO “Voices on the Wall” Asbestos Victims’ Community
“MARF & ADAO are on FB” – Kim Hoover
Mavis Nye Meso Warrior – Personal Page
Mesowarriors – Community
“Mesothelioma Warriors ( Asbestos Cancer) fundraising Group” – Jan Weston
“mesothelioma tears- for those of us who have lost a loved one” – Jan Weston

Patient and Family Blogs and Stories

Mick Knighton Chris’s-story
Deidre van Gerven – Blog New Zealand
 “Mesothelioma and me”  by Debbie B.
“Living with mesothelioma” by Mavis N.
“Mesothelioma – Jan’s Journey” by Jan E.
“Doing something positive” by Linda W.
“Nonna’s Haven” by Vickie A.
“Heather’s Hope”, by Heather
Mick Knighton Chris’s-story
Deidre van Gerven – Blog New Zealand

TEDx Video Narrative: “Turning Anger to Action” by Linda R

Asbestos Victims’ Organizations eNewsletters

Asbestos Disease Awareness Organization (ADAO)
December GIPPSLAND ASBESTOS RELATED DISEASES SUPPORT (GARDS)

Asbestos Victims’ Organizations (AVO) Websites – NOTE

The following AVO websites will be added to the Global Ban Asbestos Network (GBAN) social media portal at www.gban.net

ADSVIC (Asbestos Diseases Society of Victoria Inc. – Australia
Asbestos Action Tayside
Asbestos Diseases Foundation of Australia
Asbestos Diseases Society of Australia
Asbestos Support West Midlands – United Kingdom
Asbestos Victims Association (AVA) – Australia
Associação Brasileira dos Expostos ao Amianto (ABREA) – Brazil
Association Belge des Victimes de l’Amiante (ABEVA) – Belgium
Ban Asbestos Canada
Bernie Banton Foundation (BBF) – Australia
Cheshire Asbestos Victims Support Group – United Kingdom
Derbyshire Asbestos Support Team – United Kingdom
Grippsland Asbestos Related Disease Support – Australia
Hampshire Asbestos Support & Awareness – United Kingdom
Hazards Campaign – United Kingdom
June Hancock Fund
Northeast Asbestos Support & Awareness – United Kingdom
Queensland Asbestos Related Disease Society – United Kingdom
Right On Canada
Sheffield & Rotherham Asbestos Group – United Kingdom
Wahana Lingkungan Hidup – Indonesia
White Lung Association


https://www.blf.org.uk/support-for-you/asbestos-related-conditions/asbestosis

Asbestos Support Groups

The following is a list of support groups set up to help victims and relatives suffering from asbestos related diseases.

Last updated May 2014

Asbestos Support Groups

Asbestos Awareness & Support Cymru

Telephone: 02920 363550

Bradford Asbestos Support Group

Telephone: 01274 393 949

Bristol and Beyond Asbestos Family Support

Telephone: 07544 213475

British Lung Foundation (London)

Telephone: 020 7688 5555

Cheshire Asbestos Support Group

Telephone: 01928 576 641

Clydeside Action on Asbestos

Telephone: 0141 552 8852

Clydebank Asbestos Group

Telephone: 0141 951 1008

Counselling Directory

http://www.counselling-directory.org.uk/

Cumbria Asbestos-Related Disease Support

Telephone: 07583 166681

Derbyshire Asbestos Support Team

Telephone: 01246 380 415

East & North Hertfordshire Lung Cancer/Mesothelioma Support Group

Telephone: 01707 328111 x3319 or 01438 781217

East London Mesothelioma Support (ELMS)

Telephone: 0800 8766773

Greater Manchester Victims of Asbestos Support Group

Telephone: 0161 953 4037

Hands of Time Mesothelioma Support Group

Telephone: 0207 188 5918

HASAG – Hampshire Asbestos Support & Awareness Group

Telephone: 02380 010 015 / 02380 010 016

Hillingdon Lung Cancer & Mesothelioma Support Group

Telephone: 01895 279584

Leeds Lung Cancer & Mesothelioma Patient Support (LAMPS) Support Group

Telephone: 0113 2067916

Macmillan Mesothelioma Online Community website section

http://community.macmillan.org.uk/search/searchresults.aspx?q=mesothelioma

Manchester Mesothelioma Support Group run by Greater Manchester Asbestos Victims Support Group

Telephone: 0161 636 7555

Mersyside Victims of Asbestos Support Group

Telephone: 0151 236 1895

Mesothelioma Support Yorkshire

Telephone: 01423 555872 or 01535 294535

Mick Knighton Mesothelioma Research Fund

Telephone: 0191 2637386

Papworth Mesothelioma Support Group, Cambridge

Telephone: 01480 364889

Ridings Asbestos Support and Awareness Group (RASAG). (Leeds)

Telephone: 0113 231 1010

Sheffield and Rotherham Asbestos Group (SARAG)

Telephone: 01709 360 672

Southend Lung Cancer and Mesothelioma Information and Support Group

Telephone: 01702 435555 ext 6835

Swindon & South West Support Groups

Telephone: 01793 532995

The Oxford Mesothelioma Patient and Carer Group

Telephone: 01865 226119

West Hertfordshire Trust Support Group

Telephone: 01923 217010

National Asbestos Support Associations and Groups

Thank you for visiting this website resource giving details on asbestos and mesothelioma support groups. It is simply an information website and is not associated with any charity.

Breathing in asbestos fibres is damaging to the lungs and can cause four main diseases:

  • Asbestosis – a non-malignant scarring of the lung tissue
  • Asbestos-related lung cancer
  • Mesothelioma – a form of cancer mainly affecting the lining of the lungs
  • Non-malignant pleural disease (diffuse pleural thickening and pleural plaques)

Asbestos is the term for a group of minerals that is made up of thousands of microscopic fibres. We now know the dangers of breathing in asbestos but for many years we didn’t and it was used in buildings for roofing, flooring and insulation. Thankfully its use is now banned but buildings built before the year 2000 may still contain asbestos. The HSE has more information on asbestos health and safety.

Anyone who has worked in the construction industry may be at risk in jobs such as joiners, plumbers, electricians, painters and builders. Those who worked in railway engineering, factories and shipbuilding may also be at risk. Fire and Rescue officers may also be at risk having entered burning buildings that contain asbestos.

If you think that you are suffering from an asbestos related disease such as mesothelima or asbestosis, then you should immediately seek medical attention and contact your local GP. There are also a large number of national and local asbestos and mesothelioma support groups who can advice you on your condition and provide support and guidance for both you and your family. They, as well as specialist solicitors may also be able to advise you on asbestos and mesothelioma compensation claims.

Asbestos and Mesothelioma Support Groups

These are groups whose primary activity is to make home visits to asbestos victims, provide a comprehensive advice service, provide ongoing support, campaign on behalf of victims.

Asbestos Action Tayside (covering East of Scotland)

Asbestos Action Tayside
Caledonian House
Greenmarket
Dundee
DD1 4QB
01382 225715
alison@asbestosactiontayside.org.uk
john@asbestosactiontayside.org.uk
www.asbestosactiontayside.org.uk

Asbestos Support West Midlands

138 Digbeth,
Birmingham
B5 6DR
0121 678 8883
asbestosinfo@wmht.co.uk
http://www.asbestossupportwm.org

Cheshire Asbestos Victims Support Group

3 Fryer Street
Runcorn, Cheshire WA7 1ND
01928 576641
cavsg@btconnect.com
www.cavsg.co.uk

Clydebank Asbestos Group

8 Crown Avenue,
Radnor Park
Clydebank
G8 3BW
0141 951 1008
clydebankasbestos@ntlbusiness.com
www.clydebankasbestos.org

Greater Manchester Asbestos Victims Support Group

Windrush Millennium Centre, Unit 2.5
70 Alexandra Road, Moss Side
Manchester, M16 7WD
0161 636 7555
asbestos.gmavsg@gmail.com
www.asbestos-victims-support.org

Hampshire Asbestos Support & Awareness Group

79 Radstock Road
Southampton
Hampshire
SO19 2HT
02380 010 015 and 02380 010 16
lisa@hasag.co.uk; lynne@hasag.co.uk
www.hasag.co.uk

Merseyside Asbestos Victims Support Group

3rd Floor, Oriel Chambers,
14 Water Street
Liverpool
L2 8TD
0151 236 1895
info@asbestosdiseases.org.uk
www.asbestosdiseases.org.uk

South Yorkshire Asbestos Victim Support Group

SARAG
Unit 37
Moorgate Crofts Business Centre
South Grove
Rotherham
S60 2DH
01709 360 672
sarag.asbestos@gmail.com
www.saragasbestossupport.org

Asbestos Support and Campaign Organisations

These are groups whose primary activity is to provide support and campaign on behalf of victims; raise funds for research into asbestos-related diseases

Asbestos Awareness & Support Cymru

02920 363550
enquiries@a-a-s-c.org.uk
www.a-a-s-c.org.uk

Asbestos in Schools Campaign

c/o Kriss Payne, Parliamentary Researcher to Annette Brooke MP
020 7219 8193 (Fax: 020 7219 1898)
christine.payne@parliament.uk
www.asbestosexposureschools.co.uk

Cumbria Asbestos-related Disease Support

c/o Barrow & District Disability Association,
71-77 School Street,
Barrow-in-Furness
Cumbria LA14 1EJ
01423 206 570
cardsadvice@gmail.com
www.cumbria-ards.co.uk

June Hancock Mesothelioma Research Fund

c/o Riverside East,
2 Millsands, Sheffield
S3 8DT
0114 274 4420
info@junehancockfund.org
www.junehancockfund.org

Mesothelioma UK

Glenfield Hospital
Groby Road Leicester
LE3 9QP
TEL 0800 169 2409
mesothelioma.uk@uhl-tr.nhs.uk
www.mesothelioma.uk.com

Mick Knighton Mesothelioma Research Fund

c/o British Lung Foundation, Sir G B Hunter Memorial Hospital
The Green, Wallsend
NE28 7PB.
0191 263 7386
cknighton-mkmrf@btconnect.com
www.mickknightonmesorf.org

Northern TUC Asbestos Support & Campaign Group

c/o West View Advice & Resource Centre Ltd
The Community Centre
Miers Avenue
Hartlepool
TS24 9JQ
TEL: 01429 271294
www.ascg.org.uk

Paul Readhead Asbestos Support & Awareness Group

c/o 59 Eade Close
Newton Aycliffe
County Durham
DL5 7QQ
TEL 01325 310133
enquiries@prasag.co.uk
www.prasag.co.uk
_____________________________________________________________

Other Contacts

British Asbestos Newsletter

http://britishasbestosnewsletter.org/
East London Mesothelioma Support
0800 8766 773
info@elms-group.co.uk
www.elms-group.co.uk

Accident Claims Advice

enquiries@accidentclaimsadvice.org.uk
http://www.accidentclaimsadvice.org.uk/

London Hazards Centre

Hampstead Town Hall Centre
213 Haverstock Hill
London NW3 4QP
020 7794 5999
http://www.lhc.org.uk

International Ban Asbestos Secretariat

lka@btinternet.com
www.ibasecretariat.org

Mesothelioma UK

National Macmillan Mesothelioma Resource Centre
Hospital Management Offices, Glenfield Hospital, Groby Road, Leicester LE3 9QP.
Helpline: 0800 169 2409
Fax: 0116 250 2810
E Mail: mesothelioma.uk@uhl-tr.nhs.uk
www.mesothelioma.uk.com

International Asbestos Organisations

International Ban Asbestos Secretariat (IBAS)

Collection of international information about asbestos.
http://ibasecretariat.org/

Mesothelioma Applied Research Foundation

Website of the Mesothelioma Applied Research Foundation (MARF), the American nonprofit organization dedicated to eradicating mesothelioma as a life-ending disease.
http://www.marf.org

Mesothelioma Information and Resources Group

The Mesothelioma Information and Resource Group (MIRG) is an organisation created to assist patients, family, friends and loved ones in learning about mesothelioma and other asbestos-related injuries. It is the aim of MIRG to provide information about the disease, its causes, its treatment and its personal and legal impact.
www.mirg.org/

Asbestos Disease Awareness Organization (ADAO)

The Asbestos Disease Awareness Organization (ADAO) is the largest independent asbestos victims’ organization in the U.S. It was founded in 2004 to give asbestos victims and concerned citizens a united voice, to raise public awareness about the dangers of asbestos exposure and to work towards a global asbestos ban. ADAO is dedicated to preventing asbestos-caused diseases through national and international education, advocacy, and community initiatives.
www.AsbestosDiseaseAwareness.org

There may be more mesothelioma and asbestos support groups than those listed.

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